Carole Blueweiss

Man Up: Parenting a Child Born with a Rare Genetic Syndrome


The 5P- Society (Cri du Chat)

Cri du Chat Society Facebook Page

National Organization for Rare Disorders



You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.

22:30 “When you’re hurt, you hurt others”

30:59 “If empathy was the first point of reference for people, that would go a long way”

39:07 – “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”

44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”

50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”

51: “Kindness doesn’t mean weakness. Kindness means strength.”


Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021) 


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The Wisdom Shared Team

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  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

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